EDITORIAL Acta Pediátr Mex "! El nacimiento de un niño con síndrome de Down. El impacto de la primera entrevista con los padres The birth of a child with Down syndrome. The impact of the ÄYZ[WHYLU[PU[LY]PL^ Karla Adney Flores-Arizmendi, 1 Armando Garduño-Espinosa,2 Rosalía Garza- Elizondo3 1 Residente de posgrado del curso de Alta Especialidad en Atención Integral a Niños con Síndrome de Down. 2 Subdirector de Medicina, jefe de la Clínica de Atención Integral a Niños con Síndrome de Down. 3 Jefa de Educación Médica Continua, profesora adjunta al curso de posgrado Clínica de Atención Integral a Niños con síndrome de Down. /ŶƐƟƚƵƚŽEĂĐŝŽŶĂůĚĞWĞĚŝĂƚƌşĂ͕DĠdžŝĐŽ&͘ ,SUHJPTPLU[VKL\UUP|VJVUTHSMVYTHJPVULZ JVUNtUP[HZVZxUKYVTLZNLUt[PJVZLZ\UHJVU[LJPTPLU[VYLSH[P]HTLU[LMYLJ\LU[L!KLH KL SVZ UHJPKVZ ]P]VZ [PLULU HSN\UH THSMVYTHJP}U TH`VYZ\ÄJPLU[LTLU[LPTWVY[HU[LWHYHWVULYLU WLSPNYVZ\]PKHVZ\KLZHYYVSSV"LZ[HZP[\HJP}UZL HJVTWH|HKL\UNYHUPTWHJ[VMHTPSPHYZVJPHS` TtKPJVX\LW\LKL[LULYJVUZLJ\LUJPHZ[YmNPJHZ1 ,SPTWHJ[VKLLZ[LLZJLUHYPVW\LKLZLYKL]HZ[HKVYWVYX\L\UVKLSVZLZ[PNTHZTH`VYLZKLSH ]PKHLZX\L\UOPQVUHaJHJVUHSN\UHTHSMVYTHJP}U"SVZWHKYLZLUZ\TH`VYxHUVWPLUZHUX\L Z\OPQVW\LKL[LULYSH,Z[VW\LKLWYVK\JPYSLZ\U ]LYKHKLYVJOVX\L`X\LUVLU[PLUKHUIPLUSH PUMVYTHJP}UUVSHHJLW[LU`X\LZ\OPQVW\LKH [LULYNYHUKLZWYVISLTHZ 3H WYPTLYH LU[YL]PZ[H JVU SVZ WHKYLZ KL \U UP|VJVUZVZWLJOHKLZxUKYVTLKL+V^ULZ KLJPZP]H WHYH KL[LYTPUHY Z\ M\[\YV 3H HJLW[HJP}U LZ SH IHZL ` LS TV[VY WHYH PUPJPHY Z\ [YH[V:PLZ[VUVZLSVNYHSHZWVZPIPSPKHKLZKL H[LUJP}UKPZTPU\`LU`ZLMH]VYLJLSHY\W[\YH KLSHMHTPSPH2 ,UT\JOHZVJHZPVULZJ\HUKVL_PZ[L\UJVU[YVS WYLUH[HSHKLJ\HKVW\LKLKL[LJ[HYZLHSN\UHHUVTHSxHLULS[YHUZJ\YZVKLSLTIHYHaV`SVZWHKYLZ www.actapediatricademexico.org ZĞĐŝďŝĚŽ͗ŵĂLJŽ͕ϮϬϭϯ ĐĞƉƚĂĚŽ͗ŽĐƚƵďƌĞ͕ϮϬϭϯ Correspondencia Dr. Armando Garduño Espinosa Subdirector de Medicina, Jefe de la Clínica de Atención Integral a Niños con Síndrome de Down /ŶƐƟƚƵƚŽEĂĐŝŽŶĂůĚĞWĞĚŝĂƚƌşĂ Insurgentes Sur 3700-C. México 04530 DF Tel. 10840900 ext.1482 [email protected] ƐƚĞĂƌơĐƵůŽĚĞďĞĐŝƚĂƌƐĞĐŽŵŽ͗ Flores-Arizmendi KA, Garduño-Espinosa A, GarzaElizondo R. El nacimiento de un niño con síndrome de Down. 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DĂůĞĂŶ^͘ŶŽŵĂůşĂƐĐŽŶŐĠŶŝƚĂƐ͘Ŷ͗ǀĞƌLJ'͘EĞŽŶĂƚŽlogía, Fisiopatología y Manejo del Recién Nacido. 5a ed. ƵĞŶŽƐŝƌĞƐ͗WĂŶĂŵĞƌŝĐĂŶĂ͕ϮϬϬϭ͖ϴϰϭͲϴϲϬ͘ 2. Garduño EA. El pediatra y los derechos de los niños con ŵĂůĨŽƌŵĂĐŝŽŶĞƐĐŽŶŐĠŶŝƚĂƐ͘ŶŽŶƚĂĐƚŽϭϵϵϱ͖ys//͗ϭͲϱ͘ 3. Los hijos discapacitados y la Familia. Serie Escuela para WĂĚƌĞƐ͘DĠdžŝĐŽ͗dƌŝůůĂƐ͕ϭϵϵϴ͖ϭϱͲϮϳ͘ 4. Rossel K. Apego y vinculación en el síndrome de Down, ƵŶĂĞŵĞƌŐĞŶĐŝĂ͘ZĞǀWĞĚŝĂƚƌůĞĐƚƌŽŶϮϬϬϰ͖ĚŝƐƉŽŶŝďůĞĞŶ͗ ŚƩƉ͗ͬͬǁǁǁ͘ƌĞǀŝƐƚĂƉĞĚŝĂƚƌŝĂ͘ĐůͬǀŽůϭŶƵŵϭͬƉĚĨͬĂƉĞŐŽ͘ƉĚĨ͘ 5. ^ŬŽƚŬŽ͕ĂŶĂůZ͘ƉŽLJŽƉŽƐŶĂƚĂůƉĂƌĂŵĂĚƌĞƐĚĞŶŝŹŽƐ ĐŽŶƐşŶĚƌŽŵĞĚĞŽǁŶ͘ZĞǀ^LJŶĚƌŽǁŶϮϬϬϰ͖Ϯϭ͗ϱϰͲϳϭ͘ ϲ͘ ĂƐƟĚĂƐD͕ůĐĂƌĂnj'D͘ŽŵƵŶŝĐĂĐŝſŶĚĞůĂŶŽƟĐŝĂĚĞů ŶĂĐŝŵŝĞŶƚŽĚĞƵŶŶŝŹŽŽŶŝŹĂĐŽŶ^şŶĚƌŽŵĞĚĞŽǁŶ͗Ğů efecto de una predicción desalentadora. Rev Fac Nac Salud WƷďůŝĐĂϮϬϭϭ͖Ϯϵ͗ϭϴͲϮϰ͘