2 CONTENT 1 Methodology • Research • Immersion (coYupik) • Workshop 03 2 The big ideas co-created 35 3 Factors fur a successful implementation • The service model • Needs covered and critical functions 56 4 Annex • Personas – POV – HMW 73 // METHODOLOGY 4 METHODOLOGY: OVERVIEW The process consisted of 5 phases: PERSONAS We introduce you to… Trini (81) Each participant receives a Handbook to understand in depth the context and the unmet needs of the Alzheimer Patient and Caregiver in Barcelona / Catalonia. The WS participants perform a series of activities on coYupik (our co-innovation platform) to prepare for the Workshop. Idea 01 Margarita (46) Preparation of WS material based on the research: Personas + POV + HMW + Big Idea & Prototyping Templates. WS to explore new service models that will improve the policies for Alzheimer's disease in Barcelona / Catalonia. Report of obtained ideas for new policies described in detail. RESEARCH / THE CHALLENGE ALZHEIMER’S DISEASE / Chronic, degenerative, incurable 5 RESEARCH / THE CHALLENGE THE SPANISH SOCIAL AND HEALTHCARE SYSTEM 6 RESEARCH / THE CHALLENGE THE CONTEXT IN SPAIN / Pessimistic view of the future and concern about health 7 RESEARCH / THE CHALLENGE THE CONTEXT IN CATALONIA / The elderly will be 20% of the populations in 2020 8 RESEARCH / THE CHALLENGE THE CONTEXT IN CATALONIA / People affected by Alzheimer will grow to 275.000 in 2020 9 RESEARCH / THE ECOSYSTEM THE ALZHEIMER’S PATIENT ECOSYSTEM / 3 main layers and 6 key agents to improve the care 10 RESEARCH / THE ECOSYSTEM 11 RESEARCH / THE ECOSYSTEM 12 RESEARCH / THE ECOSYSTEM 13 RESEARCH / THE ECOSYSTEM 14 RESEARCH / THE ECOSYSTEM 15 RESEARCH / THE ECOSYSTEM 16 RESEARCH / UNMET NEEDS INNOVATION OPPORTUNITIES / 3 service providers working separately 17 RESEARCH / UNMET NEEDS AD’S UNMET NEEDS 18 RESEARCH / UNMET NEEDS 1. SLOW DOWN DETERIORATION 19 RESEARCH / UNMET NEEDS 2. PREPARE FOR THE FUTURE 20 RESEARCH / UNMET NEEDS 3. ADAPT THE ENVIRONMENT 21 RESEARCH / UNMET NEEDS 4. FEEL USEFUL AND ESTABLISH SOCIAL INTERACTIONS 22 RESEARCH / UNMET NEEDS 5. RECONCILE CARE WITH LIFE 23 RESEARCH / UNMET NEEDS 6. EMOTIONAL SUPPORT 24 RESEARCH / UNMET NEEDS 7. HAVE THE SITUATION UNDER CONTROL 25 RESEARCH / UNMET NEEDS 8. PROMOTE SOCIAL EDUCATION 26 RESEARCH / THE CHALLENGE FOR THE WORKSHOP 27 IMMERSION The participants performed a series of activities - 1 day per week during 3 weeks - in a process to discover the relevant insights to be used in the Workshop. coYupik is our Co-Innovation Digital Platform. The Yupik are native Alaskan communities which historically were very mobile, travelling with the migration of mammals, fish and plants. In these communities, technology was highly adapted to survival in the sub-arctic environment, and was fine-tuned through the centuries by trial and error. This is the idea behind coYupik, put the right people to solve challenges together in several iterations with the aid of technology and relevant stimuli. 28 29 IMMERSION CoYupik / Day 1 CoYupik / Day 2 CoYupik / Day 3 OBJECTIVE: UNDERSTAND THE CHALLENGE AND THE CONTEXT OBJECTIVE: UNDERSTAND THE HEALTHCARE & SOCIAL SERVICES SYSTEMS AND THE AGENTS OBJECTIVE: START THINKING ABOUT SUSTAINABLE SOLUTIONS • What is happening in both Spain and Catalonia. • What is Alzheimer’s. • How many people are affected by Alzheimer’s in Catalonia (today and in the future). • How they are organized. • What is offered and what the main gaps are. • Who the agents are and when do they intervene. • How to involve private companies in the fight against Alzheimer’s. • Provide examples of relevant initiatives to start thinking about service models. WORKSHOP November 27th 2013 Disseny Hub Barcelona METHODOLOGY: WORKSHOP AGENDA 31 METHODOLOGY: WORKSHOP GENERATION PROCESS 32 33 METHODOLOGY: BCD PROJECT LEADERS ISABEL ROIG EUGENIA MARTÍ INÉS PELÁEZ Managing Director BCD Barcelona Design Centre Innovation Director Design & Communication / International (EU) Projects Coordinator President BEDA, Bureau of European Design Associations BCD Barcelona Design Center BCD Barcelona Design Center 34 METHODOLOGY: THE A PIECE OF PIE PROJECT TEAM SERGIO GAUSACHS CRISTÓBAL CABO ALEXANDER ARTOLA MARINA DEULOFEU HERNAN LEW LAURA CIRIA Innovation and Marketing Strategist Business Anthropologist and Communication Design Strategist Strategic Designer and Engineer Graphic Designer and Business Anthropologist Business Anthropologist and Communication Business Anthropologist and Neuroscience BBA & MSc (ESADE and Duke University) BS Anthropology (Los Andes University) and Design Thinking (DSchool Hasso Platter Institute Berlin) Technical engineering in Industrial Design and Master in Strategic Design (Mondragón Unibertsitatea) Social and Cultural Anthropology (Barcelona University) and BA Graphic Design (ELISAVA) Social and Cultural Anthropology (Barcelona University) and Publicity (UAB) Anthropology (UB), Psychology (Manchester) and Aeronautical Engineer (TUDelft ) // THE BIG IDEAS CO-CREATED WORKSHOP RESULTS OVERVIEW The 6 BIG IDEAS generated are described with the following structure: TEAM’S PRESENTATION Each member’s name with the institution/company they work for and their role. BIG IDEA SELECTED & DEVELOPED Each team selected the big idea with the greatest potential (amongst the IDEAS PRE-SELECTED, see details below) and developed it in detail. BIG IDEA PROTOTYPE The final idea is described with a prototype, using drawings and cards. AND THE BASIS FOR THE BIG IDEAS CAN BE FOUND IN THE ANNEX IDEATION Each member of the group gave 1 idea for each of the 5 How Might We Questions proposed - from the point of view of the 2 Personas: Patient or Caregiver. IDEAS PRE-SELECTED After ideation, each group member selected 1 of the ideas and created a first sketch. 36 37 TEAM 1 TEAM NAME / 009 JOSEP BENAVENT i2Health Sant Pau Researcher Barcelona, Spain STEVEN CLEEREN Design Flanders Project Manager, PMP/PMI Brussels, Belgium LECH ULIASZ Warsaw Government Administration Project coordinator Warsaw, Poland SEVDALINA VOYNOVA Sofia Development Association Director of Programmes Sofia, Bulgaria 38 TEAM 1: BIG IDEA DEVELOPMENT NAME OF THE IDEA / 48h HOME REDESIGN DESCRIPTION OF IDEA: COST STRUCTURE: • The idea is to create a multidisciplinary voluntary team (design students, engineers, professionals designers, architects, and handy people) to redesign a home for people with Alzheimer’s to become friendlier, easier to orientate oneself and easier to use; keeping it very simple, very cheap and very quick. • Labor cost= 0 Euros (voluntary) • Material= 500–600 Euros (approx.) • The aim is to do simple redesigns to the furniture, like having a device to make it easier to stand up from the bed; and create systems of simple signs. For example: some drawings on the floor to show you the way to the bathroom, and using another color to indicate the kitchen. • To involve public authorities, the system will use the existing movement instant architecture (that only works with public spaces), moving them to private spaces. c AND Caregiver): NEEDS COVERED (PATIENT • Dementia friendly home environment, cost efficient approach, maintain autonomy. FUNDING STRATEGY: • Labor: students of architecture / design / engineering / etc. get credits for this, family members, volunteers who want to get experience, fulfillment, social recognition. • Materials: using recycled furniture that’s there, sponsorship from a furniture brand like IKEA (designer could do IKEA hacking, redesign their furniture), public funding (for coordinating the teams). The furniture company would use as CSR and also develop new furniture and devices. THE DISSEMINATION: • Networks to share your experience and your new ideas so that they know what you can do at home in a cheaper way. That platform would have a set with all the best practices alongside examples and pictures. • Some ways to share and upscale this project are: oto be presented on a TV program ocreate a design contest oparticipate with student’s work. KEY PLAYERS / CAPABILITIES INVOLVED: • Public Authorities and the Education System. • Volunteers . • Family. • Furniture brand like IKEA. TEAM 1: IDEA’S PROTOTYPE 39 40 TEAM 2 TEAM NAME / SMART LIVE MARIA KLEINE Stockholm’s government Project Manager Stockholm, Sweden JESÚS BERDÚN Fundació i2CAT Project Engineer Barcelona, Spain ESTHER WIJNBERG Care Company Antwerp Manager service center Antwerp Area, Belgium ISABEL ROIG BCD Barcelona Design Centre Managing Director Barcelona, Spain JUSSI SORSIMO Culminatum Innovation Program Director Espoo, Finland 41 TEAM 2: BIG IDEA DEVELOPMENT NAME OF THE IDEA / SMART LIFE DESCRIPTION OF IDEA: NEEDS COVERED (PATIENT c AND CAREGIVER) • Create a living lab where Caregivers can work at the same place than the elderly people. The work done by the Caregivers consist of creating devices specifically designed for people with Alzheimer’s (for example the Smart Watch), and in the living lab they can test them with the elderly who are doing their daily routine (examples: eating, listening to music, relaxing, socializing with other people with Alzheimer’s…). • Sharing. • It’s an initiative for some business and product development opportunities; for example, a start-up service company using user testing services. • Public-private system. • The aim is to join the social and economic departments; it’s an initiative that helps Alzheimer sufferers, their family and promotes entrepreneurship allowing the Caregivers to become entrepreneurs. • Possibility for the Caregiver to work and combining their free time with caring for the Patient. • Receiving income + socializing in this support network. FUNDING STRATEGY: • City: work as a business incubator • Banks: offer a lower rent to start with, as the company is a potential investor. • Companies: use the innovation platform to have a better access to customers. COST STRUCTURE: KEY PLAYERS / CAPABILITIES INVOLVED: • Rental of the place. • Caregivers as entrepreneurs. • Patients as active players. TEAM 2: IDEA’S PROTOTYPE 42 TEAM 2: IDEA’S PROTOTYPE: BUSINESS MODEL 43 44 TEAM 3 TEAM NAME / SPANDINAVIAN MARJA-LIISA LAAKKONEN City of Helsinki, Health MD, Geriatrics specialist Helsinki, Finland TINO MARTI BSalut, CASAP Health economist Barcelona, Spain LENE LAD JOHANSEN Omsorgsbygg, City of Oslo Senior executive officer Oslo, Norway INÉS PELÁEZ BCD Barcelona Design Centre International (EU) Projects Coordinator Barcelona, Spain 45 TEAM 3: BIG IDEA DEVELOPMENT NAME OF THE IDEA / THE GARDEN, WHERE EVERYBODY BLOSSOMS DESCRIPTION OF IDEA: • Create a local platform with two different kinds of services: oA part-time job platform to receive income where you can find jobs that are suitable for your profession or your skills. oA community (Caregiver network) made with the local neighborhood, where you can find help from other Caregivers to fulfill the on-going needs of their elderly, who also will have the opportunity to socialize with other people (not just their own Caregiver) and be more active. COST STRUCTURE: • The cost of the platform structure. NEEDS COVERED (PATIENT c AND Caregiver): • Caregiver feels productive and generate income. • Patient socializes and is mentally active. FUNDING STRATEGY: • The funding must be promoted by an Alzheimer’s association, and include their services to this association; so they can give more support and also give meaning and reliability to the service. • Public lottery. • Private companies with corporate social responsibility (CSR). KEY PLAYERS / CAPABILITIES INVOLVED: • Part-time workers (caregivers) • Alzheimer’s Patients. TEAM 3: IDEA’S PROTOTYPE 46 47 TEAM 4 TEAM NAME / MEMORY PATH MARTINE BOENDERS Elderly Council of Antwerp Antwerp, Belgium LINA OILINKI City of Helsinki Senior Advisor Helsinki, Finland SASKIA NAGEL International Design Center Berlin Project Management Berlin, Germany RAQUEL NAVARRO Telefónica Research and Development Principal UX Researcher Barcelona, Spain 48 TEAM 4: BIG IDEA DEVELOPMENT NAME OF THE IDEA / MEMORY PATH DESCRIPTION OF IDEA: COST STRUCTURE / FUNDING STRATEGY: • Service based on different products developed for people with Alzheimer’s who are alone at home, to help the person be reminded of their routines by stimulating their senses: • Visual stimuli with a reminder picture frame. For example: a picture of her favorite childhood dress, so that she would want to get dressed. • Smell stimuli with a product that smells like coffee so that make the Alzheimer sufferer wants to make some coffee. • Sound stimuli with music the person likes. For example: an ice cream ringing bell, so that she would want to go out of the house; or a sound that makes her want go to sleep. The funding comes from a combination of 3 actors: • Families: who pay the rent. • Private companies or private people: get paid by healthcare and give the technical solutions (provide the service). • Healthcare system: saves money due to prevention. • The service works with sensors that can detect when the person has done the action asked, so that at the end of the day there’s a digital dairy with the checkbox filled. • It can be adopted to ongoing deterioration of the disease. • Supports Caregivers by relieving some of the tasks and worries. • It’s a tool that can be adopted to the user’s experiences, preferences and personal story, so that it makes her want to do it. It should use significant pictures, smells and sounds from her past experiences in life. c AND Caregiver): NEEDS COVERED (PATIENT • It’s a prevention element. Example: if the Patient doesn’t have coffee, the system will send a warning message. • It helps to remind the Patient of their daily activities in a safe and personal way. • It relieves the Caregiver of reminding them of all daily activities. • The system works as a memory training – it gives little tasks that help to remember. KEY PLAYERS / CAPABILITIES INVOLVED: • Private companies who design the service. • Families who pay the rent and buy this service. • Alzheimer’s Patients. TEAM 4: IDEA’S PROTOTYPE 49 50 TEAM 5 TEAM NAME / THE BOOK CORNELIA HORSCH International Design Center Berlin Director Berlin, Germany MAŁGORZATA LASKOWSKA Alzheimera Center Psychotherapist Warsow, Poland REMKO VERMULEN Telefónica digital User Experience Lead Barcelona, Spain 51 TEAM 5: BIG IDEA DEVELOPMENT NAME OF THE IDEA / THE RECIPE ACTIVITIES BOOK DESCRIPTION OF IDEA: FUNDING STRATEGY: • Create a book with 2chapters: o1st part of the book: oriented to the Patient. Activities that the Patient can still do, based on what the Patient has done during their life, for example; gardening. o2nd part of the book: tips and tricks for first time Alzheimer’s family members: oInformation from the doctor – a place to connect and ask things directly to them. • At the same time, there’s the recipe book in an online version, so that family members and Patients can share their experience. • Public initiative – from an Alzheimer institution. • Companies who are interested in Doctors specialized on Alzheimer’s. • The publisher of the book, who sells it. • Companies who would use the insights for medical research. • Insurance companies, who will have better knowledge of family members and their crisis, would lead to lower readmissions to hospital. COST STRUCTURE • The cost of the book and the online platform. NEEDS COVERED (PATIENT c AND Caregiver): • The Patient stimulates their memory. • The family members receive useful information about the disease. KEY PLAYERS / CAPABILITIES INVOLVED: • Alzheimer's Patient, who gives the ideas to be written in the book. • Family members, who give the tips in the second part of the book. • The publisher, who writes down the book and publishes it. TEAM 5: IDEA’S PROTOTYPE 52 53 TEAM 6 TEAM NAME / CASE MANAGERS TINA JANSSENS Care Company Antwerp Project Manager Zorgbedrijf Antwerpen Antwerp, Belgium EUGENIA MARTÍ BCD Barcelona Design Center Innovation Director Barcelona, Spain DANIEL López Gómez Universitat Oberta de Catalunya Tenured Assistant Professor Barcelona DENITSA LOZANOVA Sofia Development Association Program Director at Bulgarian School of Politics Sofia, Bulgaria HELI KOSKISUO City of Helsinki, Health Helsinki, Finland 54 TEAM 6: BIG IDEA DEVELOPMENT NAME OF THE IDEA / THE FACILITATORS DESCRIPTION OF IDEA: COST STRUCTURE: • The idea based on the Catalan model where there are many stakeholders that deal with this kind of disease. • The proposal has arisen due to 2 main problems: oFor Patients: who have difficulties to know who is who and about their disease. oCaregiver: has to manage with a lot of information and talk with different people, and doesn’t have free time for themselves. • Salaries for these two people. • Renting the space. • Utilities (for communication, etc.). • The idea is where 2 Facilitators who work as a team searching for new needs for the Patient and services for the Caregiver: oCase manager: interacts with the Patient and the family Caregiver and identifies their needs (e.g. physical, mental, emotional and social). oCare planner: designs a care plan with solutions provided for the needs identified by the Case Manager. Some solutions related to the needs are: memo games, tender dogs from neighbors, daily routines, bank time and create an autobiography. • Other solutions they could find are: • Department of health. • Department of social welfare and family. • NGOs. • Cultural institutions. c AND CAREGIVER): NEEDS COVERED (PATIENT • All Patient and family needs are met by the solutions given by the Case Manager. FUNDING: • Fundraising campaign. • Network of Alzheimer’s Patients and family associations. • Human rights NGOs. • Public authorities to fundraise money. • Private companies with products specialized for people with this disease. • Private insurances. KEY PLAYERS / CAPABILITIES INVOLVED: • Patients and their family. • The Case Manager and the Care Planner. TEAM 6: IDEA’S PROTOTYPE 55 // Factors for a successful implementation THE SERVICE MODEL THE SERVICE MODEL The integration of all services in an inclusive service model In a context shaped by the economic cuts to health and social services coupled with the increase of people affected by Alzheimer’s, it will be key to integrate services and create synergies between them to guarantee their sustainability in the long run. The central aspect for the service model will be to generate support for Caregivers and Patients, incorporating all relevant stakeholders in the overall ecosystem to guarantee the coverage of all the identified needs. With the product and service ideas generated during the Workshop, we have unified, articulated and supplemented them into one single service model that accomplishes the challenge raised. 57 THE SERVICE MODEL The benefits of integrating all services in one inclusive service model 58 THE SERVICE MODEL: OVERVIEW 59 // Factors for a successful implementation NEEDS COVERED & CRITICAL FUNCTIONS VISUALIZATION OF THE IDEA 1 61 62 NEEDS COVERED & CRITICAL FUNCTIONS IDEA 1 / 48h HOME REDESIGN CRITICAL FUNCTIONS SOLUTIONS In Spain it would be difficult to base this service just from volunteering. There is a need for other rewards. • It is key to involve university students that gain academic credits with their support. Institutions have to endorse the service. • Promote a design competition by a furniture brand to create prototypes adapted to Alzheimer Patients. Give rewards to the participants. As the Patients are not able to verbalize their unmet needs, a Specialist is required to act as a “translator”. • Create a pool of experts that transmit knowledge on Alzheimer’s to the different designers on a user centered perspective. • Explore the development of re/designs in low / moderate and high stages. Difficulty to find brands that sponsor the service. Motivate brands to sponsors this service by receiving fiscal benefits and also a good brand image through CSR. UNMET NEEDS ALZHEIMER PERSON FAMILY CAREGIVER Adapt the environment > The idea proposed helps to create a stable and simple space to ensure the physical safety and welfare of the Patient. 2 main gaps covered. The service informs about what needs will arise in the future and how they can be covered. The sponsor finances the necessary elements to accommodate the house. Have the situation under control > Need to keep the daily situation under control through physical security of the Patient. The gap covered would be to help through the redesign and to manage the day to day activities of the Alzheimer person in a simple and functional way giving peace of mind to the Caregiver when they are absent. VISUALIZATION OF THE IDEA 2 63 64 NEEDS COVERED & CRITICAL FUNCTIONS IDEA 2 / SMART LIFE CRITICAL FUNCTIONS SOLUTIONS Patients don't like being away from home because they lose their security zone and can react in a negative manner. • Design a transport service where the Alzheimer’s Patient feels safe and in the best conditions. • Create spaces in the smart life scenario that are familiar to their own home. Difficulties for the Caretaker to work and take care of the Patient at the same time. Create an internal rotation system for the Caregivers so that they can focus on work tasks whilst also testing products with the Patients. It’s not a model for scalability because the entrepreneur profile is difficult to find amongst Caregivers. Create ambassadors in each living lab that promote an entrepreneurship mindset to the Caregivers. UNMET NEEDS ALZHEIMER PERSON FAMILY CAREGIVER Feel useful and establish social interactions > The service covers the need due to having the Patient in an active state during the day, interacting with new products and relating to other people. The gap covered is to share experiences between people with the same disease. Reconcile care with life > The idea covers the need to combine one’s normal life with the care of the Alzheimer’s person. The gap covered is having a space that combines the possibility to work but also to take care of the Patient. VISUALIZATION OF THE IDEA 3 65 66 NEEDS COVERED & CRITICAL FUNCTIONS IDEA 3 / THE GARDEN, WHERE EVERYBODY BLOSSOMS CRITICAL FUNCTIONS SOLUTIONS One of the central critical functions is to create a trusted network between: family Caregiver –external Caregiver – Patient. Create a sense of community not only online but offline where people interact and create high levels of empathy and trust in a local environment. Validate if time is a reward that fits the model. Explore other models of rewards. Ex. Time for… A delicious dinner, My talent, A Favor, others. Money for sustaining the platform. Sell ad banners to medical companies and foundations and ONGs that finance the platform. UNMET NEEDS ALZHEIMER PERSON FAMILY CAREGIVER Feel useful and establish social interactions > Through the contact with other people the Patient establishes relationships in their daily life with people outside their household. The gap covered will be to receive emotional care from external Caregivers. Reconcile care with life and promote social education > Opening time slots for the family Caregiver through a digital platform covers their need. It also offers information to cover the need for all citizens to receive and assimilate social education designed to promote the integration and standardization of Alzheimer’s stakeholders. VISUALIZATION OF THE IDEA 4 67 68 NEEDS COVERED & CRITICAL FUNCTIONS IDEA 4 / MEMORY PATH CRITICAL FUNCTIONS SOLUTIONS The Health care system cannot afford technological developments. Look for finance in technology companies that want to expand their business in the medicine area. The Memory path is designed to help in the every day life of the patient but does not work as an alarm system if the patient is at risk or did not do an action. Include in the overall idea alarms that notify the caregivers if the patient is at risk or did not do the desired action. Finding between the caretaker and patients what are the stimuli or triggers that invited to complete the action. This has to be tested. Design a system for finding the real stimuli and triggers for the patient. UNMET NEEDS ALZHEIMER PERSON FAMILY CAREGIVER Slow down deterioration > The service covers the slow down cognitive impairment and increases their autonomy, being able to perform daily routines without the feeling of annoying loved ones. The gap covered is the access to stimulation tools to slow the deterioration. Have the situation under control > Keep the daily situation under control to guarantee the physical and emotional security of the Patient. This is a resource to manage the day to day activities of the Alzheimer person in a simple and functional way. VISUALIZATION OF THE IDEA 5 69 70 NEEDS COVERED & CRITICAL FUNCTIONS IDEA 5 / THE RECIPE ACTIVITIES BOOK CRITICAL FUNCTIONS SOLUTIONS The cost of the fieldwork, design and publishing a personalized book is high narrowing the scalability of the product. Create a feature where the Caregivers can personalize The Recipe Book on-line with a download print version. It’s unlikely that Doctors would answer all the Caregiver’s questions. The online version should have an ID system so that the Doctor could have a trace of each Patient to answer the questions depending on each case Its not clear who offers the book to the market. Medical companies can develop the book using it as a medium to engage Caregivers and Patients to use their brands. UNMET NEEDS ALZHEIMER PERSON FAMILY CAREGIVER Slow down deterioration > The service detects and aides the slowing down of cognitive impairment in order to have the maximum autonomy possible. The gap covered is the lack of knowledge about the benefits of an early Dx or the difficulty of distinguishing between the normal deterioration related to ageing and Dementia. Have the situation under control and emotional support> Be informed about symptoms or behavioral changes and difficulties, and have simple and immediate solutions. The gap covered is the lack of abilities and guides for managing the Alzheimer’s person and the lack of public policies to ensure a emotional support for the family caregiver VISUALIZATION OF THE IDEA 6 71 72 NEEDS COVERED & CRITICAL FUNCTIONS IDEA 6 / THE FACILITATORS CRITICAL FUNCTIONS SOLUTIONS The figures’ service (Case Manager and Care Planner) have an imprecise profile. •The Case Manager should be a profile that combines the GP and Social Worker roles to diagnose the disease and give a social diagnosis. •Care Planner coordinates and plans all needs identified by the Case Manager. The service with two people is not enough to cover all Patients and their families in a personalized way. Create a model similar to a franchise that can be replicated in every local scenario. It’s not defined what private companies with products specialized for people with this disease would get in return to fund this service. Give all the know how and knowledge from the different services connected to the facilitators. Design a know how extraction method for synthesizing the best practices. UNMET NEEDS ALZHEIMER PERSON FAMILY CAREGIVER Slow down deterioration > The service covers earlier detection of cognitive impairment to secure the maximum autonomy possible. The gap covered is thehe lack of coordination between the GP and the right Specialists, and the lack of access and knowledge of stimulation tools to slow down the deterioration. Have situation under control and prepare for the future > Have all the information about symptoms or behavioral changes and difficulties, learning to pay attention and be conscious of the patient’s evolution. The gap covered is the lack of advice for managing the Alzheimer’s person and the poor health and social services coordination. // ANNEX PERSONAS – POV - HMW Contextual information to understand the situation of both the Alzheimer’s Patient and the Caregiver in order to be able to answer the workshop questions from their point of view. 74 PERSONAS (81) (43) 75 PERSONA 1: ALZHEIMER PATIENT Name: Trini Age: 81 A. Type: Moderate CHARACTERISTICS EMOTIONS LIFESTYLE ∙ Lives at home with a family member. ∙ Denial of disease. ∙ Closed System. ∙ 3 years with the disease. ∙ Guilt. ∙ Close group friends. ∙ Low economical support. ∙ Embarrassment. ∙ Watch T.V. ∙ Slow learning curve of disease. - Frustration. ∙ See Grandchildren. UNMET NEEDS FEAR & PAIN POINTS DESIRES ∙ Late diagnosis. ∙ Social Interaction. ∙ No spaces as information point. “What’s the name of my grandson. I don’t remember.” ∙ Lack of knowledge of stimulation tools. ∙ No emotional Support. ∙ Limited places for sharing support. ∙ Reduced assistance & exterior mobility. ∙ Getting lost outside. ∙ Distrust limitations. ∙ People notice disease. ∙ Doubts of daily rituals. ∙ Be independent. ∙ Feel Useful. - Not annoy loved ones. ∙ Not lose family role. 76 PERSONA 2: Caregiver CHARACTERISTICS EMOTIONS LIFESTYLE ∙ Care responsibilities unbalanced. ∙ Denial of disease. ∙ Closed System. ∙ Hopeless mindset. ∙ No space for me time. ∙ Low economical support. - Solitude. ∙ Works as a freelance. Name: Margarita Age: 43 UNMET NEEDS ∙ Lack Spaces to share experiences. “There is no awareness in the society, people do not want to know anything at all about sick, old and ugly people” -Lack assistance for mobility. - Lack spaces for sharing experiences. FEAR & PAIN POINTS ∙ Alzheimer sufferer escaping . ∙ Lack of Control. - Not enough social service. ∙ No tools for future planning. - Socially no recognition of their effort . - Unpredictable reactions in public. - No flexible jobs. - Making wrong decisions. DESIRES ∙ More control of the Patient - Desire to live her own life. PERSONAS: POV & HMW QUESTIONS WE MET (PERSONA)… Trini is an 81 year old Alzheimer Patient in Barcelona. WE WERE AMAZED TO REALIZE (NEED)… Not enough services in the healthcare & social system. BUT IT’S REALLY ABOUT (INSIGHT)… Preventing the loss of autonomy to fulfill her daily activities. WE MET (PERSONA)… Margarita, 43 years old, Trini’s Caregiver. WE WHERE AMAZED TO REALIZE (NEED)… That she dedicates 110% to take care of Trini. BUT ITS REALLY ABOUT (INSIGHT)… Finding ways to control Trini’s disease to gain her independency. 77 PERSONAS: POV & HMW QUESTIONS 1. HMW create easy access and clear information about Alzheimer & solutions? 2. HMW make her feel more useful in her daily life? 3. HMW create a service to detect & anticipate deterioration? 4. HMW help her establish social interaction with community? 5. HWW help her remember her daily activities? 1. HMW create easy access and clear information about Alzheimer & solutions? 2. HMW create a platform for sharing experiences and solve questions? 3. HMW design a system for controlling Trini’s daily routines? 4. HMW help her balance between care and personal life? 5. HMW help her feel productive and receive monetary income? 78 THANK YOU!