Program at a Glance

THURSDAY, July 21, 2016
TIME
FAMILIES/ALL
WOMEN WITH BLEEDING DISORDERS
EN ESPAÑOL
ADULT MEN
SPOUSES AND PARTNERS
TEENS AND YOUNG ADULTS
8:00am-11:45am
12:00pm-1:00pm
VWD Precon
Orientation and Welcome/
New Families Reception
Hola y Bienvenidos
PLATINUM PREVIEW LOUNGE - LEVEL 2
1:00pm - 4:00pm
1:15pm-2:15pm
VON WILLEBRAND DISEASE
Today's Perspective: Blood Safety Update/
We Are Family: African American Voices
Learning to Make the Ask: Advocating for
Yourself as a Woman
The Secret Handshake: Finding a Role for
Unaffected "Others" in our Community
It's Not Too Late: Creating a Retirement Plan
Tricks of the Trade: A Cross-Generation
Conversation
Basics of VWD
BREAK
2:15pm-2:45pm
2:45pm-3:45pm
Basics of Hemophilia
From My Struggle Comes My Strength
No Es Muy Tarde Para Salvar Sus
Articulaciones
4:00pm-5:00pm
Protecting Your Child's Financial Future/
Anxiety and Depression in Adolescents/
What You Want vs. What You Need:
Realities of Access to Care/
ATHN Update
Art Therapy for Women
Función del Factor: Cómo la Vida Media le
Afecta
Hep C Update
VWD: The Next Level
5:15pm-6:45pm
PLENARY: Opening Session
7:00pm-9:30pm
EXHIBIT HALL OPENING RECEPTION - LEVEL 1
FRIDAY, July 22, 2016
TIME
FAMILIES/ALL
WOMEN WITH BLEEDING DISORDERS
10:30am-10:45am
ADULT MEN
SPOUSES AND PARTNERS
TEENS AND YOUNG ADULTS
Behind the Bedroom Door: Sex and Intimacy
for Couples
Netflix and Chill?: Relationships, Sex and
Bleeding Disorders
INDUSTRY SYMPOSIA
7:00am-9:00 am
9:30am-10:30am
EN ESPAÑOL
Family Genetics for All Bleeding Disorders/
Holistic Approach to Nutrition and Healing/
One in A Million: Rare Bleeding Disorders
Sex and Intimacy for Women
Sex and Intimacy for Men
COFFEE BREAK - EXHIBIT HALL - LEVEL 1
VON WILLEBRAND DISEASE
10:45-11:45am
Yes You Can: Reducing Stress from Infusion/
LBGT: Your Voice is Heard/
Telemedicine/
My Life, Our Future Update
HIV Treatment and Transmission Updates
On My Own
Bleeding Without a Diagnosis
LUNCH BREAK - EXHIBIT HALL - LEVEL 1
12:00pm - 1:30pm
12:15pm - 1:15pm
Remembrance Session
1:30pm-2:30pm
Caregiver Fatigue/
Dads and Daughters/
It's Not Too Late to Save Your Joints!
You, Me and It: Relationships and Bleeding
Disorders
Mind, Body, Meditation
2:45pm-3:45pm
Federal Policy Update
Age is Just A Number: Aging Gracefully with
We' re on the Same Team: Building Patienta Bleeding Disorder
Provider Relationships (2:45pm-5:45pm)
4:00pm-5:00pm
Anxiety and Depression in Adolescents/
Consumers Who Work for Industry Rap
Session/
Risk and Rewards: MRI, CT and Ultrasound
Scans
Carriers: Let's Talk
Mi Pareja y Yo
Geezer Gab
5:00pm-6:00pm
Families Rap Session/
LGBTQ Rap Session
WWBD Rap Session
Family Rap Session: En Español
Geezer Rap Session
Pregunta al Expertos: Mujeres
Embracing Your Inner Geezer: Aging
Meet the NYLI
Healthy Choices
Emerging Treatments for VWD
Career Coach
VWD Reception (4pm-6pm)
TEENS AND YOUNG ADULTS
VON WILLEBRAND DISEASE
Spouse/Partner Rap Session
INDUSTRY SYMPOSIA/DINNER
6:00pm-8:00pm
SATURDAY, July 23, 2016
TIME
FAMILIES/ALL
WOMEN WITH BLEEDING DISORDERS
EN ESPAÑOL
ADULT MEN
7:00am-9:00 am
INDUSTRY SYMPOSIA
8:00am-9:00am
Fit and Fun Walk/Run
9:00am-9:30am
COFFEE BREAK - EXHIBIT HALL - LEVEL 1
SPOUSES AND PARTNERS
9:30am-11:00am
Factor Function: How Half-Life Affects You
11:15am-12:15pm
Employee Rights in the Workplace/
WFH World Congress Preview/
Your Voice Matters: Patient Focused Drug
Development
Navegando el Seguro de Salud
Real and Potential Treatment Concerns: The
Ethical Dilemmas of Product Advancement/
Ask the Experts: Inhibitors Overcoming the Odds
Art Therapy for Couples
Hidden Bleeds: Understanding Microbleeds
Joint Health and Pain in VWD
Cuando la Cultura Influencia el Cuidado de
Salud
New Wheels: Ankles
Teen Track Awards
Advocating for Your Care VWD
PLENARY: Awards Ceremony & Closing Session
3:30pm-4:30pm
5:00pm-10:00pm
Powerful Partnerships
PLENARY: Lunch Symposium
12:30pm-2:00pm
2:15pm-3:15pm
Medicare, Aging and SNFs
NHF's Annual Meeting Final Night Event - Off site
Meeting
point: Osceola Ballroom, Level 2 - 5:00pm