Sistema de Vigilancia Epidemiológica y Reporte – SIVER Epidemiological Surveillance System The surveillance is designed as a comprehensive and integrated system of data collection, production and dissemination of information. M. Graciela Abriata, Coordinadora del Sistema de Vigilancia Epidemiológica y Reporte – SIVER/INC . Epidemiological Surveillance System – SIVER “Good surveillance does not necessarily ensure the making of the right decisions, but reduces the chances of wrong ones” Institute of Medicine, 1988 Networking for the surveillance of risk factors for NCD in Latin America and the Caribbean. OMS-OPS M. Graciela Abriata, Coordinadora del Sistema de Vigilancia Epidemiológica y Reporte – SIVER/INC . Epidemiological Surveillance System Data sources S.S. Salud O. S. Nacionales y provinciales Population-based Cancer Registries Analysis and PAMI INDEC - Census SIVER ONGs dissemination of technical and scientific information Hospital-based cancer registries Mortality Risk Factor Surveys Registros Civiles M. Graciela Abriata, Coordinadora del Sistema de Vigilancia Epidemiológica y Reporte – SIVER/INC . Epidemiological Surveillance System Population-based cancer registries 2010 4 provinces covered: 10% 3 local registries: 6% 6 Discontinued activities: 26% 4 developing provinces: 8% Without registry Developing registries Discontinued activities Active registries Population covered: 16% M. Graciela Abriata, Coordinadora del Sistema de Vigilancia Epidemiológica y Reporte – SIVER/INC . Epidemiological Surveillance System Population-based cancer registries 2013 11 provinces covered: 22% 4 local registries: 8% 3 Enable to guarantee quality: 13% 2 developing provinces: 4% Without registry Developing registries Can not guarantee good quality data Active registries Population covered: 30% M. Graciela Abriata, Coordinadora del Sistema de Vigilancia Epidemiológica y Reporte – SIVER/INC . Epidemiological Surveillance System PBCR Extent Bahía Blanca Catamarca Chaco Chubut Córdoba Entre Ríos Jujuy La Pampa Partido Gral. Pueyrredón Mendoza Misiones Neuquén Río Negro San Juan Santa Fe Santiago del Estero Tierra del Fuego Tucumán Local Province Province Province Local Province Province Province Local Province Province Province Province Province Local Province Province Province Population 301572 334568 984446 413237 1329604 / 3066801 1158147 611888 299294 618989 1579651 965522 474155 552822 620023 52509 / 30000701 804457 101079 1338523 Start year of activity CanReg 4 5 5 4 4 4 4 4 5 4 5 4 4 5 4 5 4 5 Data sent 1989 VII-VIII-IX-X 2011 2002 2002 2003 X 1990 VII-VIII-X 2003 2005 IX 2012 2002 X 2013 2009 X 2003 2013 2003 X 2012 2003 X 2010 CI5 Published VIII-IX-X X VII-VIII X X M. Graciela Abriata, Coordinadora del Sistema de Vigilancia Epidemiológica y Reporte – SIVER/INC . Estimated age-standardised incidence rates in men and women. Argentina, 2008. Breast Prostate Lung Colorectum Cervix uteri Bladder Stomach Kidney Pancreas Ovaruy Oesophagus Larynx Women Men ASR x 100000 0 5 10 15 20 25 30 35 40 45 50 55 60 65 70 75 M. Graciela Abriata, Coordinadora del Sistema de Vigilancia Epidemiológica y Reporte – SIVER/INC . Age-standardised incidence rates in men by PBCR of: Bahía Blanca, Santa Fe, La Pampa, Entre Ríos, Córdoba, Neuquén, Tierra del Fuego, Chubut and Jujuy compared with IARC estimated ones. Prostate Lung Colorectum País (IARC 08) Bahía Blanca (2003-07) Bladder Santa Fe (2003-06) Stomach La Pampa (2003-07) Entre Ríos (2003-09) Kidney Córdoba (2004-09) Mendoza (2005-09) Pancreas Neuquén (2003-05) T. del Fuego (2003-10) Oesophagus Chubut (2004-08) Jujuy (2003-07) ASR x 100000 Larynx 0,0 10,0 20,0 30,0 40,0 50,0 60,0 70,0 80,0 M. Graciela Abriata, Coordinadora del Sistema de Vigilancia Epidemiológica y Reporte – SIVER/INC . Age-standardised incidence rates in women by PBCR of: Bahía Blanca, Santa Fe, La Pampa, Entre Ríos, Córdoba, Neuquén, Tierra del Fuego, Chubut and Jujuy compared with IARC estimated ones. Breast Cervix uteri País (IARC 08) Colorectum Bahía Blanca (2003-07) Lung Santa Fe (2003-06) Ovary La Pampa (2003-07) Pancreas Entre Ríos (2003-09) Córdoba (2004-09) Thyroid Mendoza (2005-09) Corpus uteri Neuquén (2003-05) T. del Fuego (2003-10) Leukaemia Chubut (2004-08) Stomach Jujuy (2003-07) Gallbladder Non Hodgkin Lymphoma ASR x 100000 0,0 10,0 20,0 30,0 40,0 50,0 60,0 70,0 80,0 90,0 100,0 110,0 M. Graciela Abriata, Coordinadora del Sistema de Vigilancia Epidemiológica y Reporte – SIVER/INC . Is there any plan for developing cancer registries in the country? Technical and epidemiological training within the framework of one of the program's objectives: "to coordinate actions for the strengthening and development of PBCR" Organizing meeting for technical and methodological consensus to ensure the quality and comparability of data. Technical assistance preparing data for CI5 Training in cancer survival analysis to estimate Relative Survival CanReg 5 training To enable the PBCR to be part of the RITA’s discussion forum (coding, staging, training in the software use and epidemiological analysis) M. Graciela Abriata, Coordinadora del Sistema de Vigilancia Epidemiológica y Reporte – SIVER/INC . • Are the government and other relevant authorities in the country committed to cancer registries? • What are the main obstacles? • Which are your support requests M. Graciela Abriata, Coordinadora del Sistema de Vigilancia Epidemiológica y Reporte – SIVER/INC . Muito obrigado Thank you very much! ¡Muchas gracias! [email protected] M. Graciela Abriata, Coordinadora del Sistema de Vigilancia Epidemiológica y Reporte – SIVER/INC .